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annie2506
Registered User
(8/12/04 12:32 am)
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Re: West Virginia - FMD
Hi Bob,
My name is Leigh Anne Truett and I live in Tampa,Florida. My story is similar to yours because I have FMD in both kidneys, and aneurysm on my aorta and FMD in the internal Cerebral arteries. I am 43 years old and had a stroke 2 years ago. During these past two years I have been bounced around Tampa to doctors trying to find a way to help. I was scheduled for a aortic valve replacement and aorta replacement last December, but the Lord stepped in and nothing had to be done, valve was working and the aneurysm was smaller. Tampa docs were planning on doing a MCA-STA bypass operation this week, but now I am going to Atlanta to see two docs there for possible angioplasty and stenting. I would love to see something on Discovery Health Channel regarding FMD. I don't get the apathy from the media. Does (heaven forbid, for I wouldn't want to put this disease on anyone) a celebrity have to come down with this disease before we get our story out? Just wondering how you are doing? Your post was a long time ago and I just found it tonight.
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wandllaw99
Unregistered User
(8/14/04 11:21 pm)
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FMD
Hi all,
My wife was just diagnosed with FMD. She has had a history of migraines and just developed some neurological symptoms recently that caused her to be admitted and get a CT angiogram, MRA and several other tests. Turns out that she is 90% occluded in her internal carotid arteries bilaterally. The doctors have not yet come back with a definitive answer on her treatment plan, but supposedly we have a great neurovascular surgeon coming in to consult on her case Monday. My wife is 36 and has been healthy to this point, other than occasional bad migraines. No history of high blood pressure or other warning signs. Now she faces the possibility that she will have to undertake a high risk procedure or be on blood thinners for the rest of her - hopefully long - life. I am sorry to hear that there are others going through the labyrinth of this disease as she is. I think that this disease is quite rare, and it probably will take a celebrity coming down with it before it gets any exposure. I heard that is is found in about .6% of people, which does add up to a huge number when multiplied by the population of this country, but what are 1.7 million ordinary people versus one celebrity... Sad but true in this day and age, it has to happen on television before its real. I wish you well, and hope that your families are hanging in there.
God bless.
Brian
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