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Comment
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Betty Lecat
Member
(3/26/04 1:01 pm)
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RE: UC MED CENTER SAN FRANCISCO
Hi, Mimi...
My name is Betty and I live in Oakhurst, Ca.
I had surgery (removal of aneursym) of renal artery diseased kidney artery at UC SF...Excellent hospital!
Have you found a Dr yet?
Betty
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Mimi
(3/27/04 7:50 pm)
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Doctor Ca...
Hi Betty: Thanks so much for the reply. Nope have not found a Doctor yet who professes to know much about FMD. Did go to UCSF in 1996 for second opinion before they embolized my left kidney. But he was a specialist in hypertension. My current cardiologist is in search of a good Doc for me to have some support with the FMD. Is your doctor such a person? I am 47 years young and have FMD in my remaining kidney. Have had 8 arteriograms in the last 7 years (to perform angioplasty). Now it seems I have 70% blockage in my carotids via ultra sound. But just got the MRA back which disputes this. This is all very frustrating to me. Coincidentally my sister (49) has the same results with her ultra sound and then MRA with different results. We have entirely different medical personnel ....so I am wondering which test result are more conclusive. Thought the MRA was the better....but now I am not so sure. Will be seeing the doctor in a few days to get some answers.
Well I hope your health is on an upward swing. I never really understood about the aneurysm potential until as of late. My understanding had been more about the webbing. But with more information popping up....I am learning I have a few more obstacles to consider with the disease.
Is Oakhurst down south? I am in Sebastopol...Northern California....home of the Gravenstein Apple.
Thanks again Betty....Mimi
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georgie24
Registered User
(3/29/04 5:09 pm)
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 Re: Doctor Ca...
HELLO MIMI MY NAME IS IRMA, I HAVE FMD. MY DR.LOUIS MESSINA IS A VASCULAR SURGEON HE IS AT UCSF HE IS A VERY GOOD DOCTOR HE WROTE A CHAPTER ABOUT FMD MAYBE YOU WANT TO TRY HIM. I LIVE IN THE BEATIFUL BAY AREA TOO (EAST BAY) TAKE CARE
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Mimi
(3/29/04 8:39 pm)
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Thanx for the Name
Hi Irma: Thank you for the Doc's name. I recently saw a vascular surgeon (who I will be seeing tommorow) and he mentioned he was going to talk to someone at UCSF about me. I will check and see if it is Dr. Messina. It is great just to hear about a Doc who might have some knowledge. My nephrologist today said I probabaly know more about my disease than most doc's....how very sad is that? Have you ever told a Doctor you have FMD and they think you are talking about Fibromyalgia (or my favoirtie Foot and mouth Disease...hee-hee). Well, Betty also said there was a Doc at UCSF...so I guess it is time to start the trek (okay only about 45 mins) to the city.
Take Care and Thanx a lot!
Mimi
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Betty Lecat
Member
(4/2/04 2:48 pm)
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REl MIMI...UC SAN FRANCISCO
Hey, Mimi, Hi!
Just checking in to see if you've found a Dr yet?
UC SF...to me...(or Stanford University) would be the closest...just tell them you want "a Dr who specializes in FMD"...
Not only Irma and myself, but several others who post on the Yahoo FMD Site have "made the trek to San Francisco/the university". Personally, from what I've learned...(remember, this is just me...) going to a university or Mayo Clinic is best bet to follow?
If it is my plight in life to have FMD, I'd rather have it now, than as little as 9 years ago as medical profession is really getting into it...
Keep me posted?
Betty
(p.s. when I went to UC SF, I saw a Dr Goldstone...one of the head vascular Drs there...he is now with University of Ohio...another (from what I understand) savy FMD institution....
B.
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Mimi
(4/2/04 3:03 pm)
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Hi Betty Thanx for the Info...
Okay...sounds like I will hook up with UCSF. As I am in Sebastopol....it is only about 45 minutes away. My vascualr surgeon here knows Dr. Messina there and has contacted him about me. Right now we are on the wait and see about my carotids. Another MRA in six months. I was handling the FMD plight okay while just in my renal artery....but since it has "moved on up" I am a bit overwhelmed. But I always try and remember I could walk outside and get hit by a car...so I will hang in there.
Now tell me Betty...are you also the Betty on the yahoo site? I am just now putting everyone together...and am so thrilled with my cyber friends!
Where in the Bay area do you live?
Okay...take care and thanx a million for all the thoughts. Mimi
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Pfairsd
Unregistered User
(9/11/04 2:21 pm)
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FMD
It's been several months since you've written. HAve you seen a specialist yet? My husband had a stroke in May, which we find is due to FMD in his carotid arteries. We're in San Diego. I have lots of questions, and the articles are so very depressing about possible outcomes.
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