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Author
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Comment
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georgie24
Unregistered User
(1/8/04 2:28 am)
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 fmd
HELLO MY NAME IS IRMA I M 43. AFTER SUFFERING WITH ELEVATED BLOOD PRESSURE SINCE I WAS 21 AND AFTER TRYING MANY MEDICATIONS IN 11/02 I HAD AN MRI DONE WHICH IT SHOWS 2 KIDNEY ANEURYSM IN BOTH OF MY KIDNEYS ARTERIES THE RIGHT THE MOST COMPLICATE TO FIX THE LEFT ONE THE LARGEST ONE. MY DOCTOR FROM KAISER REFER ME TO THE VASCULAR CLINIC IN UCSF I WAS SEEN BY DR MESSINA (PROFFESOR AND CHIEF) HE TOLD ME I NEED TO HAVE SURGERY AND THAT THERE WAS 95% CHANCES OF A SUCCESS SURGERY WELL AFTER 9 HRS IN THE OPERATING ROOM AND AFTER 7 DAYS IN THE HOSPITAL I WAS TOLD SOMETHING WENT WRONG AND I WAS GOING TO LOOSE MY KIDNEY. SINCE THAT TIME I AM LEAVING A NIGHTMARE STILL MY BLOOD PRESSURE IS NOT UNDER CONTROL EVEN AFTER TAKING 7 PILLS EVERY DAY AND PLUS I HAVE TO HAVE THE OTHER SURGERY IN MY LEFT SIDE. MY DOCTOR IS TELLING ME THAT I HAVE TO HAVE IT BECAUSE THE ANEURYSM CAN RUPTURE BUT I AM TERRIFIED IN GOING TO THE OPERATING ROOM AGAIN I WANT TO HAVE FAITH AND TRUST IN MY DOCTOR BUT I CAN AFFORD TO LOOSE MY ONLY KIDNEY!! I AM REALLY DESPERATE I AM SCHEDULE TO HAVE THIS SURGERY IN FEB 17 04 BUT I DON'T KNOW WHAT TO DO DR MESSINA IS TELLING ME THIS SURGERY WILL NOT BE THE SAME HE SAID IT WILL BE LEST COMPLICATED AND THE SUCCESS IS THE SAME 95% BUT I AM SO SCARE. I HAVE ONLY ONE SON BECAUSE THIS DISEASE TOOK MY OTHER BABY IN 1997 AFTER MY 8 MONTH OF PREGNANCY I WANT TO LIVE FOR HIM I WANT TO BE HERE WHEN HE GRADUATE I WANT TO SEE MY GRANDCHILDREN IF YOU ARE IN MY SAME SITUATION WRITE ME BACK THANKS
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FMDQ
Unregistered User
(1/19/04 6:40 pm)
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Your SURGERY IN FEB 17 04
Irma, sounds like you are truly scared. Dont be, have faith and get a second opinion no matter how "nice" your doctor is. It is best to have another set of eyes before decisions are made about your body.
And think positive, you will be there for your child. When I was first told about FMD (I dont like to say "mine" since I dont own it)it was 2001 and I had been having blood pressure issues since 1977 that went untreated. In 2001, when I read what NIH had to say about FMD, it said that those with FMD died early...first I was very upset, then it occured to me that the "life contract" does not say I will live forever. Secondly, who is setting the initial "from" date to die from? I dont know when FMD started in my body, so, the fact that it was discovered in 2001, does not mean that it will cut my life short now.
I have not heard the term "fast and furious" as a diagnosis of FMD. Either you have it, or you dont. Some address FMD different than others, I chose to do more than take an aspirin and so far, while it has not gone away, it has NOT worsen. Be positive, always be positive, there is a solution just within your eye site.
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mimi
Unregistered User
(1/29/04 8:02 pm)
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 Hang in there Ima!
Yes, Ima go and get a second opinion! You will have peace of mind, which will help you in the choices you make. Have you seen a doctor outside of UCSF, and most espeically outside of Kaiser!
Good Luck to you.
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