|
Author
|
Comment
|
Betty Lecat
Member
(6/29/04 11:23 am)
Reply
|
RE: Bertha
Hey, Bertha...
Great to see you posting...
I...I remember your name, but haven't heard from you in a long time.
My FMD is in bilateral renal arteries, with multiple aneurysms, one surgically removed...
Haven't been checked in other "areas"...hey, sometimes it's better NOT to know.
The good news is...
In the early 90's, (when I was first diagnosed) and years following that, my FMD was, for some reason, "untreatable"...blood pressure remained labile...
This past year, with smaller needles and threading mtl, they were able to do angioplasty on right kidney, and...so far, I'm on half the amount of BP pills I was before...
So...hang in there, changes are coming fast!
Great hearing from you!
Betty
|
vmotlow
Unregistered User
(7/14/04 10:51 am)
Reply
|
Santa Cruz
This is an apology for not letting someone know earlier on that I won't be able to make Santa Cruz. I would like very much to join you, but that is impossible at this time.
I just spent the last hour reading anything I could find on carotid fmd. I am taking coumadin at present.
I really dislike coumadin, and would like to know of an alternative. Any suggestions, I am interested.
|
sixtybetty
Unregistered User
(7/14/04 6:05 pm)
Reply
|
carotid artery FMD
Hey, Vena,this is Betty...your friend from Yahoo FMD Site? There's a whole bunch on Yahoo Site that have had all kinds of bypass surgerys, etc on carotid artery FMD...
Plus, any one out there (on this website) that can answer Vena?
Oh, Vena...don't "let it go by"...Soficrow (lanie), who posts on this site frequently, has written intensively re non invasvive diagnosting tests, and there are, not only case histories on this Site, but the Yahoo FMD Site...
Just write the same question...and people will reply...
There's so much being done for FMD!
Take care Vena
Betty
(Lecat)
lecatjb@sti.net if you have problems accessing other Sites...)
|
bconley
Unregistered User
(11/2/04 1:17 pm)
Reply
|
FMD
Hi,
Bertha here. How was Santa Cruz? Is there anything we need to be doing? I know everyone is busy, but could we have just a short note?
Bertha
|
sixtybetty
Unregistered User
(11/9/04 5:53 pm)
Reply
|
REl POW WOW IN SANTA CRUZ
Hi~
The Pow Wow was GREAT! Bertha, do you have access to the Yahoo FMD Site (see front page of this web site for address)...there's a photo section there and it has pictures of the 4 of us from California that attended...
We bonded...I cannot put in words how wonderful it was to be with people who truly empathized with everything I had to say...
Husbands came with (but stayed out of our way) :>
How ARE you?
Betty
|
Betty Lecat
Member
(11/9/04 6:05 pm)
Reply
|
SOFICROW...CELESTE....
What's happening?
Where are you guys?
How come this format has changed?
Betty
|
Email This To a Friend
Topic Commands
Click to receive email notification of replies 
Click to stop receiving email notification of replies 
