|
Author
|
Comment
|
Betty Lecat
Member
(3/13/04 3:28 pm)
Reply
|
HI! ONCE AGAIN I AM ATTEMPTING TO POST...
I know it's me...but I keep getting "thrown off" site?
Thanks so much for emailing!
Pat...I also emailed you on the Yahoo Website (you're from Ohio, right?) You have one of the GREATEST FMD surgeons right there in Ohio! His name is Jerry Goldstone. He use to be a professor/vascular surgeon/one of the top guys, at UC San Fran. Nancy Dominick (see her post on Yahoo Site) and I both had him (referred by our Drs) about the same time...and we didn't know each other then! We found each other on university medical posts in early 90's trying to find answers to this STUPID disease...
Gosh, I love to see us all Posting...we need to keep these Sites alive as the people behind them are working hard! I know for a fact that Celeste (one of the owners of this Site) suffers from FMD...and there's another one out there run by a gal named Soficrow (will find her site and Post it here for you)...it is wonderful to find others with same fears, complaints, etc as us, isn't it? Even though friends and family love us...it's hard to include them in all our "fears"...
God Bless and "hang in there"
Betty
California
|
JBubniak
Registered User
(4/26/04 6:50 pm)
Reply
|
FMD
I am new to this sorta thing but wanted to read others symptioms and results of surgeries and Dr visits. I was diagnosed in 1999 as having a bad ear infection I had the room spin side to side and the Dr at the ER room sent me home. The next year almost to the day I had another attack, only this time my blood pressure went 200/180 and lost feeling in left side and blinded for about 2 hours. This time went to another hospital and a Nuersurgeon was on call, the Ambulence driver had seen this before as a stroke victim and called in quickly and gave me an injection that saved my life. I was then diagnosed as FMD when they saw the MRI and the beading of the cartoid arteres in left side. Now 3 years later it is both sides and I am on straight aspirin 3 times a day to thin my blood, as I also have history of blood clots and they do not want to give me a blood thinner YET.
I am 54 and it tough to think I won't last that long.
|
Betty Lecat
Member
(6/26/04 12:46 pm)
Reply
|
How are you doing?
Haven't heard from you since your last Post?
Hey, trust me...if my understanding from all of us out here in "FMD Land" is correct,
"we're DEFINATELY making it"!
I'll check back to see if you "are checking in"
Take care,
Betty
|
|
