Betty Lecat
Member
(3/10/04 7:31 pm)
Reply
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Re: latest postings from new FMD'ers...
Gosh, I'm so sorry to read both your histories!
Please know you are not alone with this disease; there are so many of us (pls also see Yahoo Web Site for FMD) that have found each other searching for answers.
My personal history is that of being diagnosed with FMD of bilateral renal arteries with multiple aneuryms; one large enough to have what they call "bench top" surgery at UC SF in early 90's to remove aneurysm.
I hate to ask this but it's so important as to what facility we're all able to go to...do you have "private insurance" or HMO/PPO?
Where do you live?
Many posts I've read show FMD'ers going to Mayo Clinic/Rochester, Minnesota and in Arizona, University of California SF, and UC Los Angeles...
It use to be a such a few Drs that knew ANYTHING about FMD, but more and more the news on this disease is getting out...
Thanks for posting and if there's any questions, or...anything I can do, pls don't hesitate to ask.
Sincerely,
Betty
from California
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